Kendra and Brett
Kendra and Brett live in Calgary, Alberta, with their 3 boys. Their middle son, Foster, was born with SCN8A epilepsy with encephalopathy.
Support and friendships
Foster's illness is "normal" for his brothers
Talking to our other boys about Foster's illness
Making changes at work and home
How we've coped
Preparing for visits
Teaching Foster to communicate
Foster is the light of my life
Making a decision without a clear diagnosis.
Time frames are difficult
Palliative care provides reassurance
How palliative care helped us
Questions from others
Staying strong and breaking down