Sarah-Claude

Sarah-Claude lives in Quebec with her husband and three daughters. Her son, Esteban, was diagnosed with Sanfilippo Syndrome, a very rare genetic disorder. Esteban died at the age of 9. We extend our condolences to his family and friends.

Videos

 
Respite care helps the whole family
 
My advice to other families
 
Talking about Esteban's illness
 
Esteban's support dog
 
Pediatric palliative care helps with big decisions
 
Pediatric palliative care takes care of the whole family
 
Taking Esteban into the community
 
Living with many different griefs
 
Connecting with other families