Kendra and Brett

Kendra and Brett live in Calgary, Alberta, with their 3 boys. Their middle son, Foster, was born with SCN8A epilepsy with encephalopathy.

Videos

 
Support and friendships
 
Foster's illness is "normal" for his brothers
 
Talking to our other boys about Foster's illness
 
Making changes at work and home
 
Managing stress
 
How we've coped
 
Preparing for visits
 
Teaching Foster to communicate
 
Foster is the light of my life
 
Making a decision without a clear diagnosis.
 
Time frames are difficult
 
Palliative care provides reassurance
 
How palliative care helped us
 
Questions from others
 
Staying strong and breaking down