Dana

Dana is the mother of Jaxon and Savannah, living near Cornwall, Ontario. Jaxon was born with Trisomy 21 and he died in 2019, at the age of fifteen.

Videos

 
My son Jaxon
 
I had support but had to be strong on my own
 
How Jaxon's illness affected his sister
 
We lived a pretty regular life for five years
 
School was Jaxon's happy place
 
Jaxon's last days of life
 
Palliative care is about quality of life
 
Jaxon had an amazing care
 
Respite helped me care for myself
 
Working out helped my anxiety
 
I was anxious about something happening to Jaxon
 
The first celebrations are the hardest
 
Grieving the death of my child
 
What Jaxon taught me and advice I would share with other parents
 
My daughter's childhood was very affected by having a sick brother
 
Yes, I was a helicopter parent but I still let Jaxon make some choices
 
I didn't want people to feel sorry for me
 
I didn't want to always talk about sickness
 
Living with constant worry was hard
 
Figuring out who I am after Jaxon's death
 
Jaxon lived his life very well
 
Respite workers helped me manage as a single, working parent